Another non-WoW post from me, as well as far from my last entry. I’m just going to hope that someone will read this despite my inability to keep it updated.
This post will be personal…
Not personal for me directly though, but much so indirectly. I have a very dear friend that has the genetic disease Cystic Fibrosis (CF). She’ll be in a documentary that’s coming out soon. The documentary is about another CF patient and good friend of hers that’s waiting for a double lung transplant.
I urge anyone here to watch that documentary and educate yourself about this. There’s not many that even know that it exists. I’m not writing this to claim that there’s nothing else in the world that is worse, I’m writing this because this is something that’s personal… for me. For someone that has come to mean very much to me. She may as well be my immediate family.
Her name is Kina. She really is a fighter as she’s been through a lot and still remain an amazingly loving person, spreading joy and happiness where she goes.
Here’s the trailer for the documentary.
If you want to know more about CF, or my friend’s story and experiences going through the double lung transplant, you can go to Fighting To Breathe. More on Eva can be found here. I’m going to help her with getting the forums working, and well… as you can see, it’s still under maintenance, but please stay tuned. You can also look at my Youtube channel “tinyphreak” where I have a playlist (directlink here) with little clip from Eva that explains it a bit better… and give a better image than I can possibly pain with words.
Though I can’t tell it as well as she can, I’ll say this for those that can’t spend 15 minutes to watch an educational video or prefer to read.
With a double lung transplant, the fight is far from over for a patient with CF. It just makes it easier to breathe. Many of CF patients will suffer from other things, such as chronic backpains because of the constant coughing they’ve done and other illnesses due to the weak physical state they’re in overall, and will take multiple medicines a day - and I’m not talking about the odd five (which are a lot to me personally to start with). Multiply that number with 5-6 and you’ll be in the right ballpark. Worrying about germs, allergies… the body rejecting the lungs. Rejection is extremely fatal.
The money that a CF patient needs to spend on medicines are insane, as you can probably guess by the amount. This is not something they need to take, it’s not simply to make life easier. It’s to survive.
I’m not asking anyone here to do something, I’m just raising awareness. Just, consider donating your organs… a death can be so much more than just a tragedy.
I know that I’m going to go and put my name on a list of organ-donors, as soon as I find out if there’s complications of transferring it when I move over-seas.
If you have any questions, feel free to ask. I’ll direct any questions to Kina and possibly even Eva if you want any of their answers directly, or if you just want to send them your thoughts.
Guess that’s all for now.
Be safe,
~Tony “Leaf” <3


Fine then, have a seat. This might take a while.

Very grateful for this one and I hope it stays.
